Pete Frates listens to a guest at Fenway Park, in Boston, in a Sept. 18, 2017, file photo.The Associated Press
Pete Frates, a former college baseball player whose battle with Lou Gehrig’s disease helped inspire the ALS ice-bucket challenge that has raised more than US$200-million worldwide, died Monday. He was 34.
Mr. Frates died peacefully, surrounded by his family, they said in a statement.
“A natural born leader and the ultimate teammate, Pete was a role model for all, especially young athletes, who looked up to him for his bravery and unwavering positive spirit in the face of adversity,” the family said. “He was a noble fighter who inspired us all to use our talents and strengths in the service of others.”
The ice-bucket challenge began in 2014 when pro golfer Chris Kennedy challenged his wife’s cousin Jeanette Senerchia, whose husband has ALS, also known as Lou Gehrig’s disease after the New York Yankees great who suffered from it.
ALS patient Pat Quinn, of Yonkers, N.Y., picked up on it and started its spread, but when Mr. Frates and his family got involved, the phenomenon exploded on social media.
The process was simple: Take a bucket of ice water, dump it over your head, post a video on social media and challenge others to do the same or make a donation to charity. Most people did both.
Thousands of people participated, including celebrities, sports stars and politicians – even Donald Trump before his election and cartoon character Homer Simpson. Online videos were viewed millions of times.
“The ALS ice-bucket challenge represents all that’s great about this country – it’s about fun, friends, family and it makes a difference to all of us living with ALS,” Mr. Frates said at the time.
The challenge has raised about US$220-million worldwide, including US$115-million alone for the Washington-based ALS Association.
“Pete Frates changed the trajectory of ALS forever and showed the world how to live with a fatal disease,” the group said in an e-mail. “He inspired everyone he met and his efforts to lead the ice bucket challenge had a significant impact on the search for treatments and a cure for ALS.”
Lou Gehrig’s disease, also known as amyotrophic lateral sclerosis or motor neuron disease, is a progressive neurodegenerative disease that leads to paralysis owing to the death of motor neurons in the spinal cord and brain. There is no known cure.
Mr. Frates, a native of Beverly in the Boston suburbs, was a three-sport athlete at St. John’s Prep in nearby Danvers. He went on to play baseball at Boston College. He played professionally in Germany after graduation and in amateur leagues upon his return to the United States.
He was playing for the Lexington Blue Sox in 2011 when he got hit on the wrist by a pitch and noticed that it wasn’t healing properly. After months of testing, Mr. Frates was diagnosed with ALS in 2012.
“The man upstairs has a plan for me,” he told The Salem News in 2012. “I’m not having too many issues with this, mentally. This is the hand I’ve been dealt and I’ve made my peace with it. There are people out there that don’t have my support system or my advantages, and I want to help them.”
As the disease progressed, he became paralyzed and had to use a wheelchair, lost the ability to talk and had to be fed through a tube.
With the help of funds raised by the ice-bucket challenge, significant investments in research on the causes of and potential treatments for ALS have been made. Dozens of research institutions and hundreds of scientists around the world have benefited from the money raised.
The ALS Association said it used to spend about US$4-million to US$6-million a year on research, but that has increased to US$17-million to US$19-million a year since the ice-bucket challenge exploded.
The challenge has also been used to raise awareness for other charitable causes.
Mr. Frates’s father, John, said targeted research led to advances in treating other diseases.
“When I was a young kid, we were worried about polio. When Magic Johnson got AIDS, it was a death sentence. If we get money flowing into ALS, things will get better,” he told The Salem News. “Hopefully, Pete can be that spokesman that sparks that.”
The death was announced just hours after Major League Baseball displayed Mr. Frates’s BC baseball cap at a news conference to announce a charity auction to benefit ALS research. ESPN announcer Jon Sciambi said Nancy and John Frates wanted to be at the winter meetings in San Diego for the announcement, but stayed home to take care of Pete. “Pete continues to fight strong and inspire everyone today,” Mr. Sciambi said. “I wish Pete could be here, and, Pete, if you’re watching, we love you. Keep fighting, pal.”
Baseball commissioner Robert Manfred Jr. called Mr. Frates an inspiration.
“The courage and determination of Pete Frates inspired countless people throughout the game he loved and around the world,” Mr. Manfred said. “He galvanized ALS awareness for a new generation and honoured the memory of a fellow ballplayer, Lou Gehrig.”
Mr. Frates maintained close ties to his alma mater. The school will name a new 31,000-square-foot baseball and softball training centre scheduled to open next summer the Pete Frates Center.
Mr. Frates leaves his wife, Julie; daughter Lucy; parents John and Nancy; and siblings Andrew and Jennifer.
A funeral mass will be held Friday at St. Ignatius of Loyola Parish, next to the Boston College campus. The family also plans a celebration of his life closer to their Beverly home at a later date.
Our Morning Update and Evening Update newsletters are written by Globe editors, giving you a concise summary of the day’s most important headlines. Sign up today.